Improving Cancer-Related Outcomes with Connected Health

A Report to the President of the United States from the President's Cancer Panel

Menu
Share:

President's Cancer Panel Action Items and Responsible Stakeholders

Action Items Responsible Stakeholder(s)
Objective 1: Enable interoperability among institutions and individuals that support care delivery across the cancer continuum, from prevention through treatment, survivorship, and end-of-life care.
Action Item 1.1: Health IT stakeholder groups should continue to collaborate to overcome policy and technical barriers to a nationwide, interoperable health IT system.
  • Government agencies
  • Healthcare systems
  • Healthcare providers
  • Standards development organizations
  • Public- and private-sector health IT developers
Action Item 1.2: Technical standards for information related to cancer care across the continuum should be developed, tested, disseminated, and adopted.
  • ASCO
  • Standards development organizations
  • Health IT vendors
  • Healthcare organizations
  • ONC
Action Item 1.3: Standard, open API platforms should be developed and used to facilitate development of cancer-related apps.
  • ONC
  • Public- and private-sector health IT developers
Objective 2: Enable individuals to manage their health information and participate in their care across the cancer continuum.
Action Item 2.1: Develop and validate interfaces and tools that support individuals’ engagement in their care across the cancer continuum.
  • Healthcare organizations
  • Public- and private-sector health IT developers
  • Public and private research funding organizations
  • Patient advocacy organizations
Action Item 2.2: Organizations should develop processes that enable individuals to flag perceived errors in their medical records and ensure that responses are provided and appropriate changes are made in a timely manner.
  • Healthcare organizations
  • Public- and private-sector health IT developers
Action Item 2.3: Create tools and services that help individuals identify cancer-related clinical trials appropriate for their particular situations.
  • Research institutions
  • NIH/NCI
  • Public- and private-sector health IT developers
  • Patient advocacy organizations
Objective 3: Ensure that federal programs and health IT tools support the oncology workforce as it delivers care.
Action Item 3.1: Federal incentive programs should promote use of health IT to enhance provider delivery of high-quality, patient-centered care.
  • ONC
  • CMS
Action Item 3.2: EHR vendors and healthcare organizations should employ human-centered design principles to ensure that EHR interfaces are intuitive and aligned with providers’ workflows.
  • Public- and private-sector health IT developers
  • Healthcare organizations
Action Item 3.3: Develop and test tools and interfaces, including apps, tailored to needs of the oncology workforce.
  • Public and private research funding organizations
  • Public- and private-sector health IT developers
  • Healthcare organizations
  • Professional organizations
Objective 4: Facilitate health information access and sharing by ensuring adequate Internet access.
Action Item 4.1: Support initiatives and programs to ensure that everyone in the United States has adequate Internet access if so desired.
  • FCC
  • Internet service providers
  • Nonprofit organizations
Action Item 4.2: Support initiatives and programs to ensure adequate Internet access for all healthcare providers and organizations.
  • FCC
  • Public and private stakeholders
Objective 5: Facilitate data sharing and integration to improve care, enhance surveillance, and advance research.
Action Item 5.1: Use learning healthcare systems to support continuous improvement in care across the cancer continuum.
  • ASCO
  • Healthcare organizations
  • ONC
Action Item 5.2: Use health information technologies to enhance cancer surveillance.
  • ONC
  • NCI SEER
  • CDC NPCR
  • State cancer registries
  • Public- and private-sector health IT developers
Action Item 5.3: Integrate data from various sources to create knowledge networks for cancer research.
  • NIH/NCI
  • Patient-driven knowledge networks
  • Other public and private stakeholders
High-Priority Research to Advance Connected Health for Cancer
  1. Improve understanding of how connected health can enable effective teamwork in healthcare.
  2. Identify strategies to enhance individuals’ engagement in their healthcare.
  3. Develop approaches for using data from connected devices in meaningful ways to enhance clinical care.
  • NIH/NCI
  • CDC
  • PCORI
  • Healthcare organizations
  • Professional organizations
  • Patient advocacy organizations
  • Research institutions
  • Other public and private research organizations

Note: ASCO = American Society of Clinical Oncology; CDC = Centers for Disease Control and Prevention; CMS = Centers for Medicare & Medicaid Services; FCC = Federal Communications Commission; NCI = National Cancer Institute; NIH = National Institutes of Health; NPCR = National Program of Cancer Registries; ONC = Office of the National Coordinator for Health Information Technology; PCORI = Patient-Centered Outcomes Research Institute; SEER = Surveillance, Epidemiology, and End Results Program

Back to Top Back to Top


Published November 2016